![]() ![]() CDC funds the Centers for Birth Defects Research and Prevention, which collaborate on large studies such as the National Birth Defects Prevention Study (NBDPS births 1997-2011), to understand the causes of and risks for birth defects, such as craniosynostosis. Understanding the factors that are more common among babies with a birth defect will help us learn more about the causes. However, in most cases, craniosynostosis is thought to be caused by a combination of genes and other factors, such as things the mother comes in contact with in her environment, or what the mother eats or drinks, or certain medications she uses during pregnancy.ĬDC, like the many families of children with birth defects, wants to find out what causes these conditions. In some cases, craniosynostosis occurs because of an abnormality in a single gene, which can cause a genetic syndrome. Some babies have a craniosynostosis because of changes in their genes. The causes of craniosynostosis in most infants are unknown. Researchers estimate that about 1 in every 2,500 babies is born with craniosynostosis in the United States. How Many Babies are Born with Craniosynostosis? Sometimes, if the condition is not treated, the build-up of pressure in the baby’s skull can lead to problems, such as blindness, seizures, or brain damage.
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